It’s been a while since I posted on my blog. I’ve wanted to, and have had plenty to share, but you know how it goes, life gets busy. So here I am, to give an update about how I’ve been loving (or disliking) my MS life.
After Dr. Chippendale, my neurologist of 20 years, passed away from an aggressive cancer last April, I knew it was going to be impossible for a new doctor to fill his shoes. That being said, I’m doing my research and refuse to settle for a neurologist that doesn’t have a wonderful bedside manner and knows his/her MS. Period. I’ve always preached to fellow patients about the importance of having a neurologist that is not only trustworthy and knowledgeable, but someone they would consider a friend. The relationship you have with your doctor will be one of the most important relationships you will have while battling this dreaded disease.
The last time I was examined by Dr. Chippendale, it was determined that my MS was “worsening”. I knew I had been dealing with some new symptoms that weren’t new exacerbations requiring IV steroids, but more of a progression of my disease. I haven’t wanted to admit that I was having difficulty on the treadmill or in my yoga classes. My left side, particularly my hand and leg, are weak, numb and tingle a lot of the time. Simple tasks like opening a jar or buttoning a shirt are nearly impossible, not to mention walking my two boxers. Since I’m a one-eyed-patient, any time I have problems with my healthy eye, it obviously needs to be addressed. Since I’m over 40, I thought I just needed some reading glasses to see small print and not have to strain my eye. My ophthalmologist gave me a prescription for glasses and while some days they help me see a little clearer, most nights and some days my vision becomes so blurry I can’t get on the computer or even watch TV.
After over 5,000 self-adminstered injections, tonight may very well be my last (I had to stop and read that out loud after I typed it). I have been a patient advocate while taking Copaxone for almost 16 years. It’s a wonderful therapy that I believe helped keep my MS in check for a long time. I met some of the most amazing friends who not only share this disease with me, but share the same passion to help others who are living with MS. This change is not something I wanted, but I need to do what’s best for me – so I can have the hope of a healthier future, filled with love and laughter (and seeing and walking!).
So as I prepare to give myself what could be my last injection tonight, I will thank Copaxone for the many years and celebrate that Monday morning I will begin a new chapter in my MS Life. A chapter filled with a lot of hope!
Thanks in advance for all of your well wishes and prayers.
With love and hope,
Tricia
Thanks for sharing Tricia. I hope this therapy gets you back on track. You are beautiful inside and out and I’m blessed to call you friend.
praying that you will be surrounded with His peace
I love you and hope to see you soon.
I will always be your friend, love you. I am so jealous, no more daily injections. Give Jake a hug for me. Being a advocate will never feel the same, I am so glad we trained togther in 1999.
Sweet Tricia,
We are praying for this new “adventure” and treatment to bring blessings without crazy side effects so you will experience great improvement! Sending lots of love and hugs!
Linda
You are loved and will be prayed for as your body adapts to this new medication. I pray for peace, comfort, love abounding, renewness, joy, hope, and joining of hands with others who have also been on this journey to give you testimony. Know that your path inspires others, especially when you are vulnerable to share the truth of your journey.
Sending prayers and hugs for great results and days filled with happiness and health Tricia. Dale and Dave
Your struggle has effected so many, and because of your attitude we all have become better people knowing you. Your positive attitude to all that life throws at you inspires me to be a better person and look at what might be in a positive way. Thank you for sharing and keep up the good work. You are blessed and loved by many.
Thanks for sharing. I have heard so many good things about this new therapy. I hope and pray it helps you Tricia. You deserve the very best.
I’ll be praying for you Tricee.
Love,
Michael Mann
>
I so appreciate your expressiveness as your life unfolds. MS will not take away the Essence and Quality of who you are. Actually, it may be adding to your depth of feeling and character. Reducing independence can be very frustrating. Even this you are conquering.
Much love,
Loren
As your mother, I am trying to be positive as you begin this next chapter… but I know how sick this chemotherapy is going to make you. You have a tendency not to want others to know the degree of your physical and emotional pain as you continue to fight for the life you desperately deserve. You are the strongest person I know and as I’ve told you many times, my hero. I’m proud to call you my daughter and will always be right here.
Ilym.
Thanks for sharing your thoughts and feelings. Love and prayers are with you and Jake every day! Love, Nancy