Tag Archives: MS

My Bitch of a Bladder

I should start by clarifying that if I’m upset with any part of my body (referring to it as a bitch), it would be my brain, since my neurological disease has been wreaking havoc in different parts of my body for a long time. I’m writing this in case there is someone out there that is dealing with some of the same issues… maybe knowing someone else feels your pain can be comforting.

I have written about my bladder issues for many years. I Really Need to Pee! was written way back in April 2012, and SomeONE with MS talks a lot about the invisible symptoms living with daily bladder inconveniences. My symptoms were initially urinary dysfunction/retention, which meant I wasn’t able to empty my bladder completely, so I’d end up with countless bladder and kidney infections.

After a few failed attempts to “dilate my urethra”, and many years of having to self-catheterize, I had surgery in 2005 where an implant (a pacemaker-like device) was effective in helping my MS brain send signals to tell my bladder to empty. It helped me for many years, but bladder issues have been prevalent in my journey with MS for as long as I can remember. Since that initial surgery 11 years ago, I’ve had four more to replace it or to change the battery.

Last year I started having a different kind of problem with my bladder. Continue reading

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Inked in Hope

Everybody needs hope.

My favorite word is hope. Anyone who knows me well, knows that’s my word. About two years after my MS diagnosis, I clung to that word knowing that I needed something to get me through the tough times that were ahead.

My favorite verse from the Bible says: “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to  harm you, plans to give you a HOPE and a future.” ~ Jeremiah 29:11

I named our boxer puppy “Hope” nine years ago.

I named my MS Walk Team “Team Hope” in 1999.

People have asked me before what I’m hopeful for. I hope for a cure of course. But I also hope that I don’t lose vision in my one good eye. I hope that I can one day see and play with my grandkids. I want to be able to walk, travel around the world, and continue my Continue reading

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What Is Love?

I made up my mind late last year. I was going to start a blog. I’ve never blogged before, but I’ve also never had a problem sharing my honest opinion and thoughts with people, especially people like me who have multiple sclerosis. I’m pretty much an open book — there aren’t many topics that are off-limits.

But why go public with a blog?

As part of my role as a patient advocate for an MS drug company, I’ve been talking with MS patients for years — hearing their concerns, sharing my stories and letting them know in some small way that there is a reason to have hope for the future (even though that’s technically not part of the job description).

As you probably know, living with MS or any chronic disease is anything Continue reading

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