Wow! It’s been so long since I’ve written anything to post on my blog, I don’t know where to start. I think it’s best to give you a few updates and leave some more detailed stories to share soon. I’ve wanted to write, but I had some “restrictions” limiting what I could write about. But now I’m back, and looking forward to spending more time here.
I’m sure it comes as no surprise that my bladder is still pretty high on my “invisible symptoms that suck” list. I’ve continued to have Botox injections into my bladder every three months to try and help with my retention issues. Unfortunately, I need to have both my urethra and bladder dilated (stretched) with each procedure, so I have to go under anesthesia and come home with a foley catheter each time. It does seem to be helping, but I continue to have a hard time peeing almost daily. I’m sure that’s due to my MS brain continuing to short-circuit when it comes to sending the correct signals to my bladder. The good news to this ever-present problem is that I’ve had the same urologist forever–and he’s the best!
For reasons unknown, but coincidentally after my second round of Lemtrada, I’ve lost my appetite and too much weight. Things just taste different Continue reading