Category Archives: Botox for Bladder

I’m Back!

Wow! It’s been so long since I’ve written anything to post on my blog, I don’t know where to start. I think it’s best to give you a few updates and leave some more detailed stories to share soon. I’ve wanted to write, but I had some “restrictions” limiting what I could write about. But now I’m back, and looking forward to spending more time here.

I’m sure it comes as no surprise that my bladder is still pretty high on my “invisible symptoms that suck” list. I’ve continued to have Botox injections into my bladder every three months to try and help with my retention issues. Unfortunately, I need to have both my urethra and bladder dilated (stretched) with each procedure, so I have to go under anesthesia and come home with a foley catheter each time. It does seem to be helping, but I continue to have a hard time peeing almost daily. I’m sure that’s due to my MS brain continuing to short-circuit when it comes to sending the correct signals to my bladder. The good news to this ever-present problem is that I’ve had the same urologist forever–and he’s the best!

For reasons unknown, but coincidentally after my second round of Lemtrada, I’ve lost my appetite and too much weight. Things just taste different Continue reading

Tagged , ,

My Bitch of a Bladder

I should start by clarifying that if I’m upset with any part of my body (referring to it as a bitch), it would be my brain, since my neurological disease has been wreaking havoc in different parts of my body for a long time. I’m writing this in case there is someone out there that is dealing with some of the same issues… maybe knowing someone else feels your pain can be comforting.

I have written about my bladder issues for many years. I Really Need to Pee! was written way back in April 2012, and SomeONE with MS talks a lot about the invisible symptoms living with daily bladder inconveniences. My symptoms were initially urinary dysfunction/retention, which meant I wasn’t able to empty my bladder completely, so I’d end up with countless bladder and kidney infections.

After a few failed attempts to “dilate my urethra”, and many years of having to self-catheterize, I had surgery in 2005 where an implant (a pacemaker-like device) was effective in helping my MS brain send signals to tell my bladder to empty. It helped me for many years, but bladder issues have been prevalent in my journey with MS for as long as I can remember. Since that initial surgery 11 years ago, I’ve had four more to replace it or to change the battery.

Last year I started having a different kind of problem with my bladder. Continue reading

Tagged , , ,