I made up my mind late last year. I was going to start a blog. I’ve never blogged before, but I’ve also never had a problem sharing my honest opinion and thoughts with people, especially people like me who have multiple sclerosis. I’m pretty much an open book — there aren’t many topics that are off-limits.
But why go public with a blog?
As part of my role as a patient advocate for an MS drug company, I’ve been talking with MS patients for years — hearing their concerns, sharing my stories and letting them know in some small way that there is a reason to have hope for the future (even though that’s technically not part of the job description).
As you probably know, living with MS or any chronic disease is anything but easy. I have hard days just like anyone. However, I refuse to give up. And I believe that I do a very good job of helping others with MS adopt that positive attitude. Contagious positivity has become my passion.
When I was brainstorming names for my blog, I thought about “Love My MS Life,” but then I dismissed it. Because I don’t “love” my MS life. I wish I didn’t have this disease, I wish no one did…the injections, the uncertainty, the exacerbations that seemingly come out of nowhere. No thanks.
But then I thought again. It’s true that I don’t love MS, but I do love my life, and MS is a very big part of my life that may never go away.
That’s why I love my MS life. And that’s why you should love yours too.